Last Monday, January 15th, we traveled as a family to Nashville, TN so that I could see a pelvic pain specialist. I have never taken a trip to see a doctor, with the kids before. I have traveled many, many times with my husband or one of my parents. I can’t drive myself, so they would drive me and I would recline the seat all the way back and lie flat as we drove hours and hours, in hopes of finding someone who could help me. I don’t pack light! I have a cooler with ice packs, bag of medicine, multiple pillows, and lots of warm clothes, because I am cold all of the time now. It’s stressful- leaving my comfort zone, traveling in pain, wondering if I will have a flare, be able to sleep, etc. I always get nervous ahead of time. I have left the kids so many times- I think I’ve been gone at least 4 months, out of the past 16 months. I miss them so much, and despite the stress of going places with them, James and I decided that this time, it was worth it to go together. That was huge for me. I felt strong enough to bring them along!
James had vacation this week, and the kids had Martin Luther King Jr. Day off from school. As it turns out, they had the whole week off, because of some snowflakes in Georgia, AGAIN! Yes, that marks twice in the same winter that we have gotten snow in GA. Woohoo! If you haven’t seen the Holderness family video about Southern families in the snow, you should! I’m not sure about copyrights and if I’m allowed to post it here? Please, google that one! Every word is true:) We told the kids that they were going to go to Tennessee, and stay at an airbnb place. Well, you would have thought that we were taking them to Paris or something. EVERYONE they saw heard “GUESS WHAT?!! We are going to TENNESSEE!!!!” It was the most exotic, fantastic place they had ever heard of! Haha. What made it so special, is that they had always been left behind when I went on another quest for medical care. To be included! Oh, boy was it a big deal! Team Whitaker was together and it was going to be an adventure, wherever we went!
I went to see Dr. Barry Jarnigan in Franklin, TN. We are acquainted with with him and his work, having spoken to him and seen him in person before. He offers amniotic allograft injections, which are sort of like stem cell injections. The ones he performs are made from donated amniotic fluid from full term pregnancies. A mother, somewhere, donated part of her body that nourished her baby for nine months. Some brilliant scientist figured out how to use this life-giving substance, and create a new substance that could enable nerves to regenerate faster and more completely. I did not feel comfortable receiving stem cells from embryos. That was offered to me, and I declined. It was touted as a “miracle” cure, and for people in pain, they will usually grasp as straws to find anything to alleviate their suffering. For me, having a clear conscience was more important. The amniotic allograft injections were an answered prayer. They take 6-8 weeks to work, and I received my first round last May. I am not cured, but they helped enough that I was able to discontinue several medications.
Our family was SO excited to be together, going on this adventure! I got nervous before we left, but I swallowed my nerves and pushed on. On the way up there, we stopped at a Shoney’s with a full buffet, and believe it or not, it was their first time at a big buffet. Oh my word. We may have broken some kind of record for trips up there. Everyone had to have at least 3 servings of jello. Yes, of all of the 97 differend kinds of food, the green jello was the most enticing. When we arrived, the house had an xbox360- which proved to be more entertaining than all of the Magic Kingdom. Wow. My kids don’t get to play video games so it was a real treat! We had tournaments and the laughter was constant! I have never played xbox before (no desire whatsoever), but my 4 year old wouldn’t play in front of his big brothers. I offered to be on his “team” so we held the controller together. In a shocking upset, we WON! His oldest brother, who happens to be the most competitive person on the planet, was flabbergasted! I was too! Nick, my 4 year old, could not have been prouder of an Olympic medal. He beat his brother! He talked about it for days.
It snowed a good bit, and with the windchill, it was -10 at the beginning of the week! My procedure had a small hiccup at the end, which required that I stay an extra couple of hours in recovery. My husband kept 5 kids in a surgery center waiting room for almost 6 hours! If that doesn’t qualify him for some kind of medal, I don’t know what does. James is my hero. He does so much for me, for everyone, and he does it with enthusiasm and joy (99% of the time!). He is so strong, that I have to remind myself not to lean too hard on him- he’s just human, and the amount of work and stress on his shoulders is enough to make anyone break at some point. He has been our rock in this crazy storm!
I was more sore than I anticipated during the recovery, but I was still so blessed to have the kiddos there. They laughed and had fierce competitions on xbox, ate an unreal amount of snacks and comfort food during the bitter cold winter storm, read books, laid beside me and cuddled, and generally made the pain more bearable, not more stressful. James took all of them to Biscuit Love and the Science Adventure Center on Wednesday, since we got stuck an extra day. No one in Georgia knows how to salt the roads, so there was no way for us to get home:) 8 hours later, after a calorie and science extravaganza, they arrived hom to tell me all about their adventure!
Y’all, I honestly had a good time! We were together again, and it felt so good to be a family. Tennessee meant SO much to them, it was exotic and they got to be included in mommy’s treatment trip. My mom kept my youngest, Lana, who hates cars with a passion. She would scream so hard as a newborn, that she would throw up in the carseat after a 10 minute ride. She just doesn’t do car trips yet! It was a gift, and a blessing, that we were able to be together, that the procedure went smoothly (for the most part), and that I was able to recover while James kept the wild ones occupied! Perspective. God has answered prayers in different ways than I expected and hoped, but he did it in His perfect way. Somehow, along the way when I didn’t notice, I got braver. It wasn’t a big, warm fuzzy whoosh of strength. Subtly, over time, the constant fear diminished. It creeps up from time to time, but I am able to push it back down. I trust that God is working this for good- my outlook is proof! I think going to Nashville to see a doctor, as a family, is a pretty good time!
Here are some pictures from our epic trip- my first one in two years with my children!
We tried to go to a cool, family friendly restaurant, but the wait was too long and the line was outside. So… we ended up in a bar! Eating pancakes:) On the bright side, it was really loud in there, so we blended right in.
Post op, feeling crummy, and guilty about James being in the waiting room for the whole day.
Recovery! I had wonderful company.