Fixed the Computer!

 

 

I’ve had so many stories, thoughts and experiences that I wanted to share, but our laptop was on the fritz. I’ve tried to get the kids to be more tech savvy and losing Google Chrome was the result of them having more computer time! I have no idea where it went, or why it doesn’t work anymore. I’ll figure that out later! I wrote something a while back, in the midst of a season of change. I’m still in that season. I feel like, for two years, I’ve been redefining who I am and what my role is every single day. I’m trying to find my footing so to speak, and it’s a lot harder than I thought it would be. Trials change you. You can’t walk through fire without getting burned, and I did. Badly. But the wounds healed slllooooowly. Veeeeeery slowly. The change was imperceptible from day to day. The only time I realized it was when I looked back. Where was I a few months ago? Where am I now? It wasn’t a giant boom, I didn’t wake up one day and shout “I’m healed!” What a cool story that would have been, right? No, it was gradual, and it’s still happening. I’m a work in progress.

This is what I wrote back in May:

IMG_1091      A lot has happened around here over the last few months! I keep telling myself I will write when I feel better and have the spare time. I’ve been putting off making phone calls to make vacation plans for the summer, and procrastinating about seeing a doctor whom I like a great deal- but I want to feel even better when he sees me again. Sometimes I have a very good reason for putting off plans or items on a to-do list, but frequently it’s an overall attitude of “when my life is perfect, then I will do it!” (whatever “it” is). I think that part of that mindset stems from fear- fear that has been so deeply imbedded in my soul for so long, it’s hard to break free from it completely. I always hold back some- will I get too tired? Will I make pain worse? Will I commit to something and then disappoint loved ones? The past two years have been traumatic for me, and I can’t deny that they have left an indelible mark in my mind. How will I choose to use this experience? These memories?
The past few months have been a leap of faith for me, and a process of letting go of fear even more. I had been on nerve pain medication (Lyrica or Neurontin) as well as pain medication (fentanyl, oxycodone, etc.) for a year and a half. I tried over half a dozen other medications as well, and suffered through every awful side effect that came in tiny print, in the little booklet from the pharmacist. My body lost all muscle, appetite, I lost a third of my body weight, and my hair thinned a lot. I always knew that the medications were temporary, and I was very hard on myself for taking anything for pain. I carried a lot of guilt over that. My dear friend Kathleen told me at the beginning, “Amy, you can worry about pain, or medication. Pick one, not both.” So, I picked pain and took the meds that my kind, conservative pain management doctor said would help.
The timeline to come off of everything was all my idea. Once we FINALLY found the right combo of interventional procedures like nerve blocks and injections, I was SO ready to be done with the meds that had allowed me to have some sanity in the midst of great pain. I cannot put into words just how awful that part has been! Fentanyl withdrawal is a special kind of torture. That was last year. The past three months I stopped the last of the nerve pain meds and oral pain medication. I even stopped motrin, because of nausea all of the time. I still had chronic pain every day when I stopped taking meds, so I think of it as a leap of faith- faith that everything would be ok, and I would be strong enough to handle life with some pain. After the first two months passed, my nervous system calmed down a lot. There’s a long, technical explanation for that, that I understand, but I won’t explain fully, since it might bore everyone!
I finally have an appetite! I would literally lie in my bed, curled in a ball, and think of all of the foods that I would eat one day, when the nausea was gone. Krispy Kreme topped the list- every time! I did research, James did, my parents did- everyone was so supportive about this next phase of trying to get my overall health back. Not gonna lie- it’s been brutal. B-R-U-T-A-L. I read that the hardest part of stopping any substance that the body is used to, is the mental battle. People use the substance as a crutch of some sort. I know how blessed I am to say that I never had that battle. At all. I have experienced every physical symptom of tolerance and withdrawal, but zero mental symptoms. I give God 100% of the credit there. Everyone has struggles in life, and I don’t think that I am better than anyone who did have to struggle with addiction.
While I am SO glad that this particular struggle is behind me, I am grateful to have gone through it. Yes, I actually said that. I have a deeper understanding of people who have addictions, and who are afraid to live their lives without a crutch. I am less judgmental- I never realized that I was before! Oh, my heart goes out to people who have to suffer through the physical symptoms that I did, AND fight a mental battle as well. If I could wrap my arms around someone suffering right now, I would do it. One of my favorite docs told me that I didn’t have the cravings or miss the meds because I didn’t let them become part of my identity. They, along with many, many interventional procedures, were a means to an end and not who I am.
Every day, I have some symptom- something that reminds me that I’m not perfectly well. Like the thorn in Paul’s side, it’s always there. I put off doing a lot of things for the past few months, because at first, I was dealing with withdrawal and increased pain while my nerves adjusted. Then, I felt weak because I hadn’t eaten well or exercised for years. Yep, that would sideline just about anyone. Daily, I started to obsess over small improvements and mark my existence and my success by how my body felt or looked. I realized last week (yeah, it took me that long!) that I had made physical well-being an “idol” in my life. I don’t think that wanting to feel healthy and strong is bad, not at all. However, obsessing over it and thinking that life will “begin” when everything is perfect- that is wrong. I failed to appreciate the progress I had made, because I was always looking on the horizon for something better. Anything can become an idol, and frequently, it’s something that appears to be good and just. Who doesn’t want to feel good? Ok, another question- who has perfect health? Hmm… Silence.
No one has perfect health, and I’m not sure why I kept thinking that it was an attainable goal. These mortal bodies are just that- fallible, fragile, and will not last forever. If I set my sights on things above, our Lord’s steadfast love, and I search for contentment in my soul, then anything that comes my way in life won’t knock me down. Like a strong wave crashing onto the beach- did you ever walk out into the surf at the beach as a child, and let the waves hit you? Sometimes they can knock you down, but usually, if you know just when to jump, they break and you are still standing. When you are lying in bed at night, after a day at the beach, sometimes you still have the sensation of waves hitting you…but you are snug in bed, and not being rocked by the ocean anymore. The waves have left their mark.

 

 


I looked at James the other day and told him I was just going to embrace whatever came my way- good or bad, but I didn’t want to wait anymore to enjoy things. I can lie beside little Lana and admire her profile and her little dimpled cheeks, even if I’m dizzy or tired. I can laugh, hard, even if I’m sore. You’ve heard the phrase “progress over perfection”? I lost sight of that. I am incredibly grateful for the progress that I have made. I will focus on that, and I’m not going to wait to celebrate anything.

IMG_1062
First swim meet of the 2018 season, on my 37th birthday. I was able to attend the whole thing!

3 thoughts on “Fixed the Computer!

  1. Melissa Perkins

    I just stumbled across this blog from your Instagram page. I wanted to stop & tell you that reading about your journey has blessed my soul. I hope to come across more in the future.

    Like

  2. Katherine McMichael

    Amy, I am so happy for you that you have found relief! I noticed you were no longer on the Facebook page for pudendal neuralgia, so I hoped it was because you were doing better. It was through your recommendations to me on FB that I found Dr. Meera Garcia and Jessica Reale. I, unfortunately, am still suffering. Dr. Garcia has moved to New York, so I am not sure who I will see for an OBGYN. I am in Newnan, so I am close to you, but my depression has gotten to be so bad that I am entering a residential treatment program in Atlanta for the depression. They will apparently take you to doctors’ appointments, though. Would you mind sharing your whole team of doctors with me and what you think has helped you the most? You can email me at katherine.a.mcmichael@gmail.com. Any advice is greatly appreciated!! Thank you so much, Katherine

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s